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Thread: Latest Update




Latest Update
user name
2006-07-30 02:14:20
Hi Everyone,

Just wanted to give you an update last Wednesday I had my
post op follow
up with the surgeon and got the pathology results which were
no cancer
in any of the lymph glands and very small amount of DCIS in
ducts left
side, no sign of aggressive cancer anywhere. I was over the
moon and
felt like I had won the lottery. 

I went straight to chemo and had herceptin, by the time I
was leaving I
was feeling pretty awful but put it down to traveling a lot
of moving
around etc, by the time I got home 45 minutes later, I was
shaking
uncontrollably and the drains on both sides were blocked, my
mum got the
right side draining and immediately 400ml poured out, I went
to bed and
two hours later another 220mls was emptied from the same
drain. Thursday
I ended up in hospital on IV antibiotics and found out after
an x-ray
that my port tube goes down the side of my chest instead of
into the
heart, so the herceptin chemo went into my chest and was the
cause of
all the problems. 

I got out of hospital yesterday and have lost movement in
both arms due
to being stuck in a hospital bed/feeling awful but that will
hopefully
improve over the next few days. Also had to have the left
drain taken
out early as that was blocked and now have fluid building up
which will
have to be drained by syringe tomorrow.

Fiona

Single mother with two daughters 1 year old and six years
old was living
in Bangkok with my own consulting business when diagnosed
Jan 06 after
six months of being told I had mastitis & blocked milk
ducts (nine
doctors two surgeons all got it wrong), immediately moved
back to
Sydney, Australia - Stage IV - Mets to Bone T9 & L4,
lymph glands left
and right arm, gland behind breast bone, ER-/PR-/HER2+++
started Chemo
14th Feb 06 - FEC x 1 /Herceptin x 1 then switched to weekly
Taxotere
70mg/Herceptin 200mg six weeks on, two weeks herceptin only,
up to Chemo
No 18 and still going. Scans done 6/06 great results,
arthritis at L4
not cancer and significant improvement everywhere, double
mastectomy
done 20/7/06 with axillary clearance both sides 22 glands
from left, 13
from right, lymph glands totally clear, DCIS small pocket
found in left
breast, nothing in right
-- 
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Latest Update
user name
2006-07-30 14:17:47
Fiona,

Sounds like you have been the route, but are on the mend. 
Good thing  
you got back to Aussie when you did.

And, although you have had a rough time, your tests sound
great.  The  
happy dance is being done in Redmond, WA USA.

Will be down under next year for a family reunion, and will
be in  
Sidney for a couple of days.  Maybe we can at least say
hello.

All my best for your continued good news.  Remember to walk
those  
fingers up the wall to get your arms back to normal.

patti



On 29/07/2006, at 7:14 PM, Fiona Thomson wrote:

Hi Everyone,

Just wanted to give you an update last Wednesday I had my
post op follow
up with the surgeon and got the pathology results which were
no cancer
in any of the lymph glands and very small amount of DCIS in
ducts left
side, no sign of aggressive cancer anywhere. I was over the
moon and
felt like I had won the lottery.

I went straight to chemo and had herceptin, by the time I
was leaving I
was feeling pretty awful but put it down to traveling a lot
of moving
around etc, by the time I got home 45 minutes later, I was
shaking
uncontrollably and the drains on both sides were blocked, my
mum got the
right side draining and immediately 400ml poured out, I went
to bed and
two hours later another 220mls was emptied from the same
drain. Thursday
I ended up in hospital on IV antibiotics and found out after
an x-ray
that my port tube goes down the side of my chest instead of
into the
heart, so the herceptin chemo went into my chest and was the
cause of
all the problems.

I got out of hospital yesterday and have lost movement in
both arms due
to being stuck in a hospital bed/feeling awful but that will
hopefully
improve over the next few days. Also had to have the left
drain taken
out early as that was blocked and now have fluid building up
which will
have to be drained by syringe tomorrow.

Fiona

Single mother with two daughters 1 year old and six years
old was living
in Bangkok with my own consulting business when diagnosed
Jan 06 after
six months of being told I had mastitis & blocked milk
ducts (nine
doctors two surgeons all got it wrong), immediately moved
back to
Sydney, Australia - Stage IV - Mets to Bone T9 & L4,
lymph glands left
and right arm, gland behind breast bone, ER-/PR-/HER2+++
started Chemo
14th Feb 06 - FEC x 1 /Herceptin x 1 then switched to weekly
Taxotere
70mg/Herceptin 200mg six weeks on, two weeks herceptin only,
up to Chemo
No 18 and still going. Scans done 6/06 great results,
arthritis at L4
not cancer and significant improvement everywhere, double
mastectomy
done 20/7/06 with axillary clearance both sides 22 glands
from left, 13
from right, lymph glands totally clear, DCIS small pocket
found in left
breast, nothing in right
--
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patti bradfield
Redmond, WA
www.phbservices.com







-- 
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Latest Update
user name
2006-07-30 18:22:38
OMIGOSH, Fiona! Thank God they found the problem, and that
the chemo you had
was not something more corrosive. And thank God you still
had drains!
Imagine what it would have been like had you not been able
to drain it out.
I hope you are feeling better soon.

Susan

-----Original Message-----
From: ibc-bouncesibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of Fiona Thomson
Sent: Saturday, July 29, 2006 10:14 PM
To: ibcibcsupport.org; Fiona Thomson
Subject: [ibc] Latest Update

Hi Everyone,

Just wanted to give you an update last Wednesday I had my
post op follow
up with the surgeon and got the pathology results which were
no cancer
in any of the lymph glands and very small amount of DCIS in
ducts left
side, no sign of aggressive cancer anywhere. I was over the
moon and
felt like I had won the lottery. 

I went straight to chemo and had herceptin, by the time I
was leaving I
was feeling pretty awful but put it down to traveling a lot
of moving
around etc, by the time I got home 45 minutes later, I was
shaking
uncontrollably and the drains on both sides were blocked, my
mum got the
right side draining and immediately 400ml poured out, I went
to bed and
two hours later another 220mls was emptied from the same
drain. Thursday
I ended up in hospital on IV antibiotics and found out after
an x-ray
that my port tube goes down the side of my chest instead of
into the
heart, so the herceptin chemo went into my chest and was the
cause of
all the problems. 

I got out of hospital yesterday and have lost movement in
both arms due
to being stuck in a hospital bed/feeling awful but that will
hopefully
improve over the next few days. Also had to have the left
drain taken
out early as that was blocked and now have fluid building up
which will
have to be drained by syringe tomorrow.

Fiona

Single mother with two daughters 1 year old and six years
old was living
in Bangkok with my own consulting business when diagnosed
Jan 06 after
six months of being told I had mastitis & blocked milk
ducts (nine
doctors two surgeons all got it wrong), immediately moved
back to
Sydney, Australia - Stage IV - Mets to Bone T9 & L4,
lymph glands left
and right arm, gland behind breast bone, ER-/PR-/HER2+++
started Chemo
14th Feb 06 - FEC x 1 /Herceptin x 1 then switched to weekly
Taxotere
70mg/Herceptin 200mg six weeks on, two weeks herceptin only,
up to Chemo
No 18 and still going. Scans done 6/06 great results,
arthritis at L4
not cancer and significant improvement everywhere, double
mastectomy
done 20/7/06 with axillary clearance both sides 22 glands
from left, 13
from right, lymph glands totally clear, DCIS small pocket
found in left
breast, nothing in right
-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
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bcsupport.org/donations.html

-- 
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