Fiona, that is absolutely incredible and totally outrageous!
I'm so glad
your mother was there to help you! The drains should have
been checked to
ensure that they weren't blocked before you left the
hospital the first
time, and I can't imagine how they managed to put the drain
in the wrong
place and never checked it out before using it for the
Herceptin treatment.
So glad you are feeling better, but you really didn't need
the added stress,
health problems or the fear that such incompetence engenders
in all of us!
I'm thanking God you're strong enough to survive their
incompetence, and
praying that the rest of your treatments and recuperation go
much, much
better!! Best wishes!
Jean, 57, No. Calif.
----- Original Message -----
From: "Fiona Thomson" <fiona thomsonbrandtman.com>
To: <ibcibcsupport.org>; "Fiona Thomson"
<fionathomsonbrandtman.com>
Sent: Saturday, July 29, 2006 7:14 PM
Subject: [ibc] Latest Update
Hi Everyone,
Just wanted to give you an update last Wednesday I had my
post op follow
up with the surgeon and got the pathology results which were
no cancer
in any of the lymph glands and very small amount of DCIS in
ducts left
side, no sign of aggressive cancer anywhere. I was over the
moon and
felt like I had won the lottery.
I went straight to chemo and had herceptin, by the time I
was leaving I
was feeling pretty awful but put it down to traveling a lot
of moving
around etc, by the time I got home 45 minutes later, I was
shaking
uncontrollably and the drains on both sides were blocked, my
mum got the
right side draining and immediately 400ml poured out, I went
to bed and
two hours later another 220mls was emptied from the same
drain. Thursday
I ended up in hospital on IV antibiotics and found out after
an x-ray
that my port tube goes down the side of my chest instead of
into the
heart, so the herceptin chemo went into my chest and was the
cause of
all the problems.
I got out of hospital yesterday and have lost movement in
both arms due
to being stuck in a hospital bed/feeling awful but that will
hopefully
improve over the next few days. Also had to have the left
drain taken
out early as that was blocked and now have fluid building up
which will
have to be drained by syringe tomorrow.
Fiona
Single mother with two daughters 1 year old and six years
old was living
in Bangkok with my own consulting business when diagnosed
Jan 06 after
six months of being told I had mastitis & blocked milk
ducts (nine
doctors two surgeons all got it wrong), immediately moved
back to
Sydney, Australia - Stage IV - Mets to Bone T9 & L4,
lymph glands left
and right arm, gland behind breast bone, ER-/PR-/HER2+++
started Chemo
14th Feb 06 - FEC x 1 /Herceptin x 1 then switched to weekly
Taxotere
70mg/Herceptin 200mg six weeks on, two weeks herceptin only,
up to Chemo
No 18 and still going. Scans done 6/06 great results,
arthritis at L4
not cancer and significant improvement everywhere, double
mastectomy
done 20/7/06 with axillary clearance both sides 22 glands
from left, 13
from right, lymph glands totally clear, DCIS small pocket
found in left
breast, nothing in right
--
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