Kudos to Bosom Buddies, based in Chicago!!!
They have a Chicago chapter and they happen to have a
Naples, Florida
Chapter.
They are easy to partner with as well. So ladies in small
towns, get your
advocacy/partnership hats on and contact: kathykompare comcast.net
They also have some resources to women fighting breast
cancer.
http://bosombuddies.org/
Anyway, I contacted them here in Naples at Bosom Buddies
Breast Cancer
4330 Tamiami TRL E; Naples, FL 34112; (239) 417-4600
They told me there are two women in the area diagnosed with
IBC. In
addition, there are two doctors that know IBC and have
offices here.
I called one, and they have me in on Thursday! YEAY!
Anyway, in the mean time, Joetta at Bosom Buddies here in
Naples is trying
to get the Komo piece on Fox 4. I told her that I, too, was
trying to get
the local stations and papers to air something on IBC (with
the Komo
piece) and posted a blurb on the local paper. I wrote in to
Fox4 again to
ask them to please run a piece on it today.
Yeay for you advocates out there -- all of you.
Whether it turns out that I have this, something else, or
nothing to be
worried about -- PEOPLE NEED TO KNOW THIS.
Please let me know if I can help.
Harmony
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