I spoke to the onc. on saturday and he said to wait and talk
to the nurse on Monday before he calls.
The gastro doc had mentioned that he may admit mom to the
hospital and try to do the procedure the next day if he
can't get her in by the end of the week. Which means if he
can't get her in by Thurs then he will admit her Thursday
nite and try to do the procedure on Friday. But each day
going by we can see her cancer getting worse.
Susan Bumgarner <susanwb charter.net> wrote:
Maybe it would help to ask the oncologist to call the
gastroenterologist.
They aren't as likely to brush him off.
Susan
-----Original Message-----
From: ibc-bouncesibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of Gurpreet Birgi
Sent: Monday, July 31, 2006 12:51 PM
To: ibcibcsupport.org
Subject: Re: [ibc] Please advise--Mom cancer spreading &
docs taking
theirtime!!
Thanks.
I've called the doc's office 5 times and left her two
messages, but still
have not been able to get in touch with the nurse.
The doc's office is now closed for an hour for lunch. I
will start
calling them again in an hour.
If she atleast gives me a date, I will be happy. Even if
it's for two
days later.
But if she tells me that she still has nothing, then I
don't know what I'm
going to do other than to start crying.
I am so afraid to call my mom at home because I don't have
any answers.
Her first question will be "when do I go for the
procedure, my cancer is
growing tell them to hurry up". I am telling them, but
noone seems to care
or listen.
Lori Bernhardt wrote:
Rosy,
Know we are all here praying for you and your mom to get
some results FAST!
You are doing everything you can by insisting like you are.
I know you are
tired, frustrated and at your wits end. I wish I could just
give you a big
HUG right now to help you through this but a cyberhug and
lots of prayers
going your way will just have to do. Keep us updated on what
the nurse says.
You are not alone, just know that...
Love,
Lori
Gurpreet Birgi wrote: Hi It's Me again.
My mom's cancer is spreading very aggresively but we cannot
do any chemo.
As an update she was on abraxane 4times but had to stop due
to gall bladder
removal and then fluid in that area and then a drain to
drain it out and now
since the fluid is not stopping they did a hida scan and
said there is a
leak and will do a ERCP to put in a stint. They can't do
chemo till two
weeks after the the ERCP is performed. WE saw the Gastro Doc
who is to do
the ERCP and my mom and I begged him to hurry and do this so
that we can
start chemo after two weeks since the cancer is spreading.
He said he would
and to call his nurse last Friday to see what she had
scheduled the
anasthesiologist since that is the tricky part where they
may have trouble
scheduling one in a hurry. I called friday and she hadn't
even called to try
to schedule the anesthesiologist. So I begged her and she
said to call on
Monday. Over the weekend my mom has been miserable. Her
breast hurts like
hell and her rash under her arm is getting worse and is also
hurting. She
now has new
lumps in her neck which we can feel. She couldn't sleep all
nite friday and
was crying all nite due to pain. Saturday I called the
gastro doc and he
said that he will try to schedule her asap but even if we
take her to the
hospital they will do nothing till monday or tuesday so
better to keep her
home. Her onc. said that he cannot do anything about the
cancer until the
issue with the leak is resolved and the best thing to do is
to keep the pain
in control. So we did and druged mom up with demerol. She
hates to take pain
killlers but she took it every 6 hours without complaint.
Now I have to call the nurse today around 2pm to see if she
has scheduled
anything. I am so scared of what she is going to say. I am
praying to God
that this doesn't get pushed further. My mom keeps calling
me asking me to
tell the docs to hurry up because her cancer is spreading. I
don't know what
to do but to cry and feel so alone and helpless.
I don't know if anyone is going to have the time to even
read this long and
boring email but if you do, please pray for us because I am
really scared.
Rosy
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