exhausted and now with severe back pain

Thank you for all your responses.  It helps to know that you
are not  
alone..and that there are people who know how you are
feeling.  I am now  
experiencing along with exhaustion severe back pain.  It's
hard to sit or  bend over...I 
feel like I am spending way too much time in bed.  I  have
called my doctor 
and will be seeing my local oncologist tomorrow. My 
question is, has anyone had 
this and what did it end up being?  It's in my  lower back
and the pain is 
constant..worse when I try to sit or bend over.
 
Thanks 
 
Lori

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Hi Lori - there are probably many things this could be, so
ask your onc or primary care doc what could be causing this.
Could be many things. I've had issues with my lower back
for years and know my disks are bulging a bit due to all the
waitressing I did in my college years, complicated by years
of travelling on an airplane and dragging a rolling bag
behind me. Unfortunately, the chemo I've been on and the
Neupogen I take, don't make this bad back of mine any
better -  and immune system boosters are notorius for
affecting spines & hips (common hard working bone marrow
locations.)
   
  This could be related to treatment you've had or could be
a separate concern. Many of us exercise less after Dx or
become less active; that can make a situation worse....
Light swimming loosens my back and hip up considerably and
makes me more comfortable, as does heat. Ask your docs to
see if they can offer some help. 
   
  Sorry to hear you have some new aches that are giving you
challenges. Its not fun !
  Laura in Livermore, CA

Auersmithpubaol.com wrote:
  Thank you for all your responses. It helps to know that
you are not 
alone..and that there are people who know how you are
feeling. I am now 
experiencing along with exhaustion severe back pain. It's
hard to sit or bend over...I 
feel like I am spending way too much time in bed. I have
called my doctor 
and will be seeing my local oncologist tomorrow. My question
is, has anyone had 
this and what did it end up being? It's in my lower back
and the pain is 
constant..worse when I try to sit or bend over.

Thanks 

Lori

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Lori, I have been experiencing hip pain and rib pain lately
as well as
severe exhaustion, and I too spend most of my time in bed,
on a recliner, or
stretched out on a couch. I have trouble sleeping at night
because of the
pain, but then I have trouble doing anything but sleep
during the day. My
doctor thinks the hip pain is from osteopenia and the rib
pain from
radiation damage. I guess the exhaustion is from Xeloda or
the cumulative
effects of all the crap I've been through for the past
couple of years. I
get really discouraged. If it's true that we will be
exhausted for three
times the length of treatment, and there's no end in sight
for the
treatment, I guess I will be exhausted forever. 

Susan

-----Original Message-----
From: ibc-bouncesibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of Auersmithpubaol.com
Sent: Monday, August 28, 2006 3:09 PM
To: ibcibcsupport.org
Subject: [ibc] exhausted and now with severe back pain

Thank you for all your responses.  It helps to know that you
are not  
alone..and that there are people who know how you are
feeling.  I am now  
experiencing along with exhaustion severe back pain.  It's
hard to sit or
bend over...I 
feel like I am spending way too much time in bed.  I  have
called my doctor 
and will be seeing my local oncologist tomorrow. My 
question is, has anyone
had 
this and what did it end up being?  It's in my  lower back
and the pain is 
constant..worse when I try to sit or bend over.
 
Thanks 
 
Lori

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Lori,
I've found that when my pelvic girdle (muscles in the
abdomen) is weakened
by not exercising I have lower back pain. I  know this is
not what you want
to hear when you are not feeling like doing anything. One
thing I did was to
start wearing supportive panties. Not panty girdles just
some spandex.
Works wonders. I even had a hard time sleeping-my back would
'catch' and it
would do a stabbing pain.  I am 21/2 years out and still
waiting for my
energy to return! Bonnie-Frederick, MD

-----Original Message-----
From: ibc-bouncesibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of Laura Reinhart
Sent: Monday, August 28, 2006 4:48 PM
To: Auersmithpubaol.com; ibcibcsupport.org
Subject: Re: [ibc] Lori - severe back pain

Hi Lori - there are probably many things this could be, so
ask your onc or
primary care doc what could be causing this. Could be many
things. I've had
issues with my lower back for years and know my disks are
bulging a bit due
to all the waitressing I did in my college years,
complicated by years of
travelling on an airplane and dragging a rolling bag behind
me.
Unfortunately, the chemo I've been on and the Neupogen I
take, don't make
this bad back of mine any better -  and immune system
boosters are notorius
for affecting spines & hips (common hard working bone
marrow locations.)
   
  This could be related to treatment you've had or could be
a separate
concern. Many of us exercise less after Dx or become less
active; that can
make a situation worse.... Light swimming loosens my back
and hip up
considerably and makes me more comfortable, as does heat.
Ask your docs to
see if they can offer some help. 
   
  Sorry to hear you have some new aches that are giving you
challenges. Its
not fun !
  Laura in Livermore, CA

Auersmithpubaol.com wrote:
  Thank you for all your responses. It helps to know that
you are not 
alone..and that there are people who know how you are
feeling. I am now 
experiencing along with exhaustion severe back pain. It's
hard to sit or
bend over...I 
feel like I am spending way too much time in bed. I have
called my doctor 
and will be seeing my local oncologist tomorrow. My question
is, has anyone
had 
this and what did it end up being? It's in my lower back
and the pain is 
constant..worse when I try to sit or bend over.

Thanks 

Lori

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bcsupport.org/donations.html


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