Thanks Tina. I felt them right through the computer.
Terri
-----Original Message-----
From: Christine Ortega [mailto:peacefaerie hotmail.com]
Sent: Monday, February 27, 2006 4:28 PM
To: daves.terriverizon.net; ibcibcsupport.org;
ibcresearchibcresearch.org
Subject: RE: [IBCResearch] Friday's news
Hi, Terri -
I just want to send you some cyber-hugs -
((((((((((Terri))))))))))
God bless you.
Tina Ortega
From: "Terri Gray" <daves.terriverizon.net>
To: <ibcibcsupport.org>, "'IBC RF'"
<ibcresearchibcresearch.org>
Subject: [IBCResearch] Friday's news
Date: Sun, 26 Feb 2006 13:59:16 -0800
>The IBC Research Foundation is the ONLY cancer research
organization
>which specifically targets IBC and the research to find
its cause.
>Please visit http://www.ibcre
search.org/donations to make a donation
>for IBC awareness and research.
>_________________________________________________
>Hello friends from IBC,
>
>I've had out-of-town guests, so I'm just now getting
around to giving
>you the info on my Friday oncology visit. First of all,
the repeat test
>to see if I over express the Her2Neu oncogene was
negative. It was good
>of my oncologist to get it checked out again. He's very
willing to do
>most of what I ask of him. My blood work shows that for
the most part,
>my liver is functioning well. The billirubin was normal,
and several
>others tests were normal. There was just one level
elevated...phosphate
>alkaline...something or other. But my onc assured me
that was due to
>the tumor trying to hog the liver space.
>
>So it was decided that I am stable enough to try the
Doxil on
>Wednesday, now that I'm not as sick as I was, even a
week ago, from the
>chemoembolization.
>Speaking of which, my onc feels that was not a success.
He says that
>although the center of the liver tumor was destroyed by
the chemo, the
>peripheral (outside) edges of the tumor continue to
grow, and thus
>cause me pain. I am still on home health nursing with my
Dilaudid pain
pump.
>Although
>I have not had to increase my volume in quite a while, I
cannot go
>without the pain meds. So we must shrink the liver tumor
so I can get
>rid of the pain, the pain meds, etc.
>
>The second positive thing that came out of my visit with
him was that
>he attended a Scripps conference in San Diego, and came
back with a
>book on the newest drugs available for each type of
cancer. My onc is
>very hopeful that I can try Lapatinib. He's going to
research this for
>me, but says I will probably have to go to a hospital
who is doing the
>clinical trials. I am hopeful there is one not too far
away, so travel
>can be minimal. It's just finished the phase I trial
and now is going
>into phase II. Since I"m Her2Neu negative, I'm
not going to be able to
>have Herceptin with it, but I still want to try it by
itself, anyway.
>
>So I am encouraged that my onc didn't offer hospice and
a sad look. I
>am hopeful now, too, which is so hopeful. Except for the
back pain, I
>don't feel like I'm losing the battle. I don't feel
like I'm dying...if
>that makes sense. And all my body functions are working
well...good
>blood pressure, pulse, etc. I have continued to drop my
weight, but
>with the help of my home health nurse, I am keeping a
food diary, and
>stabilizing the weight issue.
>I
>just get full so easily, so I'm eating lots of small
meals (except for
>today's lunch where I splurged and had a Big Mac!) And
a great thing is
>that the skin mets have never returned. So I think I've
made some great
>strides.
>Also, my lung mets are still completely gone.
>
>I've determined that chemoembolization is incredibly
more dangerous
>than anyone let on for it to be. I was told before the
procedure that
>it was mostly dangerous for those with liver disease
(sclerosis of the
>liver, etc.), and for me, with just tumors, it was a
great option.
>Well, I had that procedure December 21st, I've lost 35
pounds and I'm
>stuck to a pain pump all these months later. So....if
you ask me if I
>recommend it, I would say NO.
>
>But I have to tell you that God has sustained me, and I
am so grateful
>for that. Thank you all who have encouraged me during
these trying
>months. I hope that my chemo will make a great
improvement in my life,
>and that it will shrink the tumors once and for all.
>
>Sorry this was so long, but I wanted you to have the
full scoop.
>
>Terri
>
>May I be a blessing to you in each word I write today.
>The past is history, the future is a mystery, but the
present is a gift!
>Enjoy today.
>
>
>
>_______________________________________________
>IBCResearch mailing list
>IBCResearchwww.ibcresearch.org
>http://www.ibcresearch.org/mailman/listinfo/ibcresearch
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