Femara - Shoud Have Stayed On It! (UPDATE)

Hello All,
I want to thank you for so many suggestions on getting
through the Pet Scan.  Dr. Virginia I followed your advice
and took an Ativan.  Actually, I took one two hours before
the scan and another one hour before (my onc suggested this
as she told my husband I "must" get through the
scan).  It made me feel like I was floating on a cloud and I
actually almost enjoyed it!   
The results are:  Neck lymph nodes on both sides of neck and
also in chest positive for cancer.  Several small liver mets
described as 5 mm in size.  
I began my first chemo treatment yesterday.  They are giving
me a taxane and I am taking Aromasin.  I have pain in my
right arm from shoulder to ring and pinky fingers.   I have
lost three pounds since my last visit and my blood pressure
is high (probably from fear).  
Anyway, I blame myself for not staying on Femara and for not
going to my oncologist when the pain started way back in
July.  I went to my Primary Care Doctor instead and he gave
me anti-inflammatory drugs and physical therapy, which
actually helped.  But the pain came back big time in
November and I finally called my Onc (which was 4 months
after I had gone to my Primary Care Doctor).  I thought it
was a pulled muscle or lymphedema.  So the time I lost
seeing my oncologist allowed the cancer to get to my liver. 
Now that's a big price to pay for stupidity!  Well, wanted
to get you all up-to-date.  Wish me luck on my third fight! 
I'm wondering if when my onc said I have several spots on my
liver, if my liver looks like a piece of swiss cheese! 
Anyone with mets to liver out there?
Lydia from Ventura, California
 
 



____________________________________________________________
____________
Try Juno Platinum for Free! Then, only $9.95/month!
Unlimited Internet Access with 1GB of Email Storage.
Visit http://www.juno.com/value to sign up today!

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

So sorry you are back to active chemo Lydia.

My daughter has liver mets, but they are too big to look
like swiss  
cheese. 13 and 14 cm about 3 months ago...

Anyone talked to you about radiating the now small liver
mets?

Patti


On Nov 28, 2006, at 6:09 PM, sleepingbeauty16juno.com
wrote:

Hello All,
I want to thank you for so many suggestions on getting
through the  
Pet Scan.  Dr. Virginia I followed your advice and took an
Ativan.   
Actually, I took one two hours before the scan and another
one hour  
before (my onc suggested this as she told my husband I
"must" get  
through the scan).  It made me feel like I was floating on a
cloud  
and I actually almost enjoyed it!
The results are:  Neck lymph nodes on both sides of neck and
also in  
chest positive for cancer.  Several small liver mets
described as 5  
mm in size.
I began my first chemo treatment yesterday.  They are giving
me a  
taxane and I am taking Aromasin.  I have pain in my right
arm from  
shoulder to ring and pinky fingers.   I have lost three
pounds since  
my last visit and my blood pressure is high (probably from
fear).
Anyway, I blame myself for not staying on Femara and for not
going to  
my oncologist when the pain started way back in July.  I
went to my  
Primary Care Doctor instead and he gave me anti-inflammatory
drugs  
and physical therapy, which actually helped.  But the pain
came back  
big time in November and I finally called my Onc (which was
4 months  
after I had gone to my Primary Care Doctor).  I thought it
was a  
pulled muscle or lymphedema.  So the time I lost seeing my
oncologist  
allowed the cancer to get to my liver.  Now that's a big
price to pay  
for stupidity!  Well, wanted to get you all up-to-date. 
Wish me luck  
on my third fight!  I'm wondering if when my onc said I have
several  
spots on my liver, if my liver looks like a piece of swiss
cheese!   
Anyone with mets to liver out there?
Lydia from Ventura, California





____________________________________________________________
____________
Try Juno Platinum for Free! Then, only $9.95/month!
Unlimited Internet Access with 1GB of Email Storage.
Visit http://www.juno.com/value to sign up today!

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

patti bradfield
Redmond, WA
www.phbservices.com





[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

Hi Lydia,
  Yes, Ativan is WONDERFUL!!  I think that is why they only
prescribe ten of them at a time to me and why I act like
they are gold and only take them when I really need them : 
)  
  I have liver mets and skin mets am on the trial Lapatinib
(Tykerb) and Xeloda.  I have only been on it for five days,
but feel it may be working.  I had/have three liver mets,
largest one is 1.5 cm.  They said "small", but I
think that is pretty big.  I will let you know how this
works.  Hope your new chemo regime works for you and so
sorry as I am for myself that we have to do this
allllllllllll over again.  We are warriors though and will
keep up the fight!  
  Hugs,
  Missy

"sleepingbeauty16juno.com" <sleepingbeauty16juno.com> wrote:
  Hello All,
I want to thank you for so many suggestions on getting
through the Pet Scan. Dr. Virginia I followed your advice
and took an Ativan. Actually, I took one two hours before
the scan and another one hour before (my onc suggested this
as she told my husband I "must" get through the
scan). It made me feel like I was floating on a cloud and I
actually almost enjoyed it! 
The results are: Neck lymph nodes on both sides of neck and
also in chest positive for cancer. Several small liver mets
described as 5 mm in size. 
I began my first chemo treatment yesterday. They are giving
me a taxane and I am taking Aromasin. I have pain in my
right arm from shoulder to ring and pinky fingers. I have
lost three pounds since my last visit and my blood pressure
is high (probably from fear). 
Anyway, I blame myself for not staying on Femara and for not
going to my oncologist when the pain started way back in
July. I went to my Primary Care Doctor instead and he gave
me anti-inflammatory drugs and physical therapy, which
actually helped. But the pain came back big time in November
and I finally called my Onc (which was 4 months after I had
gone to my Primary Care Doctor). I thought it was a pulled
muscle or lymphedema. So the time I lost seeing my
oncologist allowed the cancer to get to my liver. Now that's
a big price to pay for stupidity! Well, wanted to get you
all up-to-date. Wish me luck on my third fight! I'm
wondering if when my onc said I have several spots on my
liver, if my liver looks like a piece of swiss cheese!
Anyone with mets to liver out there?
Lydia from Ventura, California





____________________________________________________________
____________
Try Juno Platinum for Free! Then, only $9.95/month!
Unlimited Internet Access with 1GB of Email Storage.
Visit http://www.juno.com/value to sign up today!

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html


[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

Dear LYDIA,
	You have done well.  Best wishes with your 3rd fight.  Glad
you had the 
Pet Scan.  Just remember hind-sight is always BETTER. 
Thanks for keeping 
us up to date.  Cheers,  MARYL, ibc, Cincinnati



-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

Lydia
I have had liver mets since diagnosis. The tumors had shrunk
with Taxotere
and Gemzar. Today I had scans again and they are growing
again so I will go
on a differentchemo. I was diagnosed in April, 2995. Good
luck and I will
keep you in my prayers. Indiana Sherry


On 11/28/06, sleepingbeauty16juno.com
<sleepingbeauty16juno.com> wrote:
>
> Hello All,
> I want to thank you for so many suggestions on getting
through the Pet
> Scan.  Dr. Virginia I followed your advice and took an
Ativan.  Actually, I
> took one two hours before the scan and another one hour
before (my onc
> suggested this as she told my husband I
"must" get through the scan).  It
> made me feel like I was floating on a cloud and I
actually almost enjoyed
> it!
> The results are:  Neck lymph nodes on both sides of
neck and also in chest
> positive for cancer.  Several small liver mets
described as 5 mm in size.
> I began my first chemo treatment yesterday.  They are
giving me a taxane
> and I am taking Aromasin.  I have pain in my right arm
from shoulder to ring
> and pinky fingers.   I have lost three pounds since my
last visit and my
> blood pressure is high (probably from fear).
> Anyway, I blame myself for not staying on Femara and
for not going to my
> oncologist when the pain started way back in July.  I
went to my Primary
> Care Doctor instead and he gave me anti-inflammatory
drugs and physical
> therapy, which actually helped.  But the pain came back
big time in November
> and I finally called my Onc (which was 4 months after I
had gone to my
> Primary Care Doctor).  I thought it was a pulled muscle
or lymphedema.  So
> the time I lost seeing my oncologist allowed the cancer
to get to my
> liver.  Now that's a big price to pay for stupidity! 
Well, wanted to get
> you all up-to-date.  Wish me luck on my third fight! 
I'm wondering if when
> my onc said I have several spots on my liver, if my
liver looks like a piece
> of swiss cheese!  Anyone with mets to liver out there?
> Lydia from Ventura, California
>
>
>
>
>
>
____________________________________________________________
____________
> Try Juno Platinum for Free! Then, only $9.95/month!
> Unlimited Internet Access with 1GB of Email Storage.
> Visit http://www.juno.com/value to sign up today!
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> **  http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

Hi Sherry,
April 2995....wow...the future.....
1995 with Live mets?  And they are now growing again?
My daughter also has liver mets, since dx 3 years ago, and I
wonder  
why when the mets have shrunk they are not zapped with
radiotherapy?   
I don't see anyone talking about this.  But if you go to any
 
institute that deals with metastatic liver cancer (not just
coming  
from the breast, but including the breast) they are doing
many  
different things.
Just wondering
Patti


On Nov 29, 2006, at 7:32 PM, Sherry Hesting wrote:

Lydia
I have had liver mets since diagnosis. The tumors had shrunk
with  
Taxotere
and Gemzar. Today I had scans again and they are growing
again so I  
will go
on a differentchemo. I was diagnosed in April, 2995. Good
luck and I  
will
keep you in my prayers. Indiana Sherry


On 11/28/06, sleepingbeauty16juno.com
<sleepingbeauty16juno.com>  
wrote:
>
> Hello All,
> I want to thank you for so many suggestions on getting
through the Pet
> Scan.  Dr. Virginia I followed your advice and took an
Ativan.   
> Actually, I
> took one two hours before the scan and another one hour
before (my onc
> suggested this as she told my husband I
"must" get through the  
> scan).  It
> made me feel like I was floating on a cloud and I
actually almost  
> enjoyed
> it!
> The results are:  Neck lymph nodes on both sides of
neck and also  
> in chest
> positive for cancer.  Several small liver mets
described as 5 mm in  
> size.
> I began my first chemo treatment yesterday.  They are
giving me a  
> taxane
> and I am taking Aromasin.  I have pain in my right arm
from  
> shoulder to ring
> and pinky fingers.   I have lost three pounds since my
last visit  
> and my
> blood pressure is high (probably from fear).
> Anyway, I blame myself for not staying on Femara and
for not going  
> to my
> oncologist when the pain started way back in July.  I
went to my  
> Primary
> Care Doctor instead and he gave me anti-inflammatory
drugs and  
> physical
> therapy, which actually helped.  But the pain came back
big time in  
> November
> and I finally called my Onc (which was 4 months after I
had gone to my
> Primary Care Doctor).  I thought it was a pulled muscle
or  
> lymphedema.  So
> the time I lost seeing my oncologist allowed the cancer
to get to my
> liver.  Now that's a big price to pay for stupidity! 
Well, wanted  
> to get
> you all up-to-date.  Wish me luck on my third fight! 
I'm wondering  
> if when
> my onc said I have several spots on my liver, if my
liver looks  
> like a piece
> of swiss cheese!  Anyone with mets to liver out there?
> Lydia from Ventura, California
>
>
>
>
>
>
____________________________________________________________
__________ 
> __
> Try Juno Platinum for Free! Then, only $9.95/month!
> Unlimited Internet Access with 1GB of Email Storage.
> Visit http://www.juno.com/value to sign up today!
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> **  http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html

patti bradfield
Redmond, WA
www.phbservices.com





[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html