Hi Lydia,
I am hoping and praying for good results with your new
treatment plan! I only hope you don't get too down on
yourself for going off Femara. It is such a hard decision
and there is no crystal ball! I just had my first set of
scans since going off chemo last winter and luckily
everything was clear. My doctor said- it was a risky
decision but we could have been doing chemo this whole time
when we could have been on a break. I know I have saved
myself this time off and my body will be better rested for
what might lie ahead- I had been on chemo for the last five
years. So we never know- maybe it is better your body got
a rest and can better fight now. I hope you never second
guess yourself (I know much easier said than done) we all
fight and do the best we can with what we know at the time-
and we all need a break sometimes! The important thing is
that you did not cause your cancer- and you did not cause
it to spread- cancer does that all on it's own!
Jeanine
-------------- Original message ----------------------
From: "sleepingbeauty16 juno.com"
<sleepingbeauty16juno.com>
> Hello All,
> I want to thank you for so many suggestions on getting
through the Pet Scan.
> Dr. Virginia I followed your advice and took an Ativan.
Actually, I took one
> two hours before the scan and another one hour before
(my onc suggested this as
> she told my husband I "must" get through the
scan). It made me feel like I was
> floating on a cloud and I actually almost enjoyed it!
> The results are: Neck lymph nodes on both sides of
neck and also in chest
> positive for cancer. Several small liver mets
described as 5 mm in size.
> I began my first chemo treatment yesterday. They are
giving me a taxane and I
> am taking Aromasin. I have pain in my right arm from
shoulder to ring and pinky
> fingers. I have lost three pounds since my last visit
and my blood pressure is
> high (probably from fear).
> Anyway, I blame myself for not staying on Femara and
for not going to my
> oncologist when the pain started way back in July. I
went to my Primary Care
> Doctor instead and he gave me anti-inflammatory drugs
and physical therapy,
> which actually helped. But the pain came back big time
in November and I
> finally called my Onc (which was 4 months after I had
gone to my Primary Care
> Doctor). I thought it was a pulled muscle or
lymphedema. So the time I lost
> seeing my oncologist allowed the cancer to get to my
liver. Now that's a big
> price to pay for stupidity! Well, wanted to get you
all up-to-date. Wish me
> luck on my third fight! I'm wondering if when my onc
said I have several spots
> on my liver, if my liver looks like a piece of swiss
cheese! Anyone with mets
> to liver out there?
> Lydia from Ventura, California
>
>
>
>
>
>
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