pain

It sounds like you are on the right track with the taxol. If
not, Memorial 
Sloan Kettering is a great place to go to, and they will
make sure you get 
the right treatment. Let us know how it goes.

Susan
----- Original Message ----- 
From: <JAKEP3aol.com>
To: <ibcibcsupport.org>
Sent: Wednesday, December 13, 2006 12:47 PM
Subject: [ibc] pain


>I would like to know if there is anything I can take
orally or put on my
> chest to help the pain and discomfort.  I have the
itchy rash but also 
> have two
> white hard (looks like small golf balls) on my left
chest wall.  I was 
> diagnosed
> with breast cancer in Feb 05 and had a masectomy on my
left breast.  At 
> time
> of surgery they inserted an expander to later insert an
implant.  Anyway, 
> went
> through the chemo for breast cancer then started to
have my chest 
> expanded.
> This was to take approx. 4 visits to the plastic
surgeon where they insert 
> a
> needle and begin inflation to stretch the skin.  On my
second visit for 
> the
> expansion I noticed a red rash and brought it to the
nurse's attention. 
> She then
> went for the dr. he checked it and said nothing to
worry about.   On my 
> third
> visit the nurse noticed that expander had ruptured
(rash was still there 
> and
> had gotten worse).  She called dr. in and he advised
expander had to be
> removed.  So we removed the expander and next visit
went to see my 
> original surgeon
> (I also had ovarian cancer in '03 and the masectomy in
05 she performed 
> both
> surgeries.  She advised that I had a recurrence of the
breast cancer which 
> was
> now in my chest wall (that is why I had the rash) and
she also said not to
> have another expander put in.  I then went back to my
oncologist and began 
> a new
> chemo (gimbian??) had several rounds of this chemo - I
felt terrible - had 
> pet
> scan and blood work and this new chemo did absolutely
nothing.  My rash 
> was
> spreading, swelling and in pain.  They started taxol (I
have completed 2 
> rounds
> - will start my 3 round tomorrow - round is 3 weeks on
and l week off.  I
> seem to feel worse when I am off chemo.  Again, my left
chest wall and 
> even under
> my arm is in a great deal of pain.  I am taking the
fentynl patch (150 
> mcg)
> change every 3rd day.  I have no discharge from these
sores but the pain 
> seems
> to be getting worse.  Dr. told me to put cream (for dry
sensative skin - 
> otc)
> to see if that helps of course it does not.  Do you
know of any medication
> that will help.  I go to Memorial
> Sloan Kettering Cancer Center in NYC and have a great
relationship with my
> surgeon and oncologist.  But I am concerned because
they say it is a 
> recurrence
> in my breast wall and never use the term IBC.
>
>
>
>
>
>
> [list software deleted text/html attachment]
>
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