Linda,
I have been recieving Herceptin since May 2003. Seems
off to think it has been coming up to 4 years next May
2007. In fact I am going in to have my port put back
in because my veins in my only stickabake arm have
failed. Not that I am mad about that - those poor
things have been getting stuck since Feb 2003.
My oncologist told me he does not see an end date for
the infusion for me. That I will be looking at it for
many more years to come. He and I both believe it is
keeping the cancer at bay. So as scared as I am to
have my port put back in I am relieved that I will no
longer have to fight with the murses when I tell them
I a hard stick and to go for these veins first.
If you do not have a port anymore than you might
concider getting one again.
I am glad we have the drug on my radar indefinitly -
At the time the beast was rearing its head I was told
I was not going to be around by my ex-onc for more
than the next Christmas - I am happy to say I am not
only celebrating my 4rth Christmas since the stupid
ex-onc told me that but I have been NED since May
2003.
Praying for the best for you.
It is better to light a candle than to curse the
darkness,
Deenie
Edeen Childers
DX July 31, 2002 with 2 primary cancers.
*Left breast - IBC - Her2neu positive and ER negative.
Cancer in the nipple and in the skin surrounding the
breast.
*Right breast - Lobular invasive carcinoma -
ER/progestone positive and Her2neu negative.
Escaped the Deadly HMO Kelsey Seybold to MD Anderson
Jan 2 2003.
39 at DX with a 5 year old autistic cild. Zachary is
the light in my world and the reason I am still here.
I had a recoccurance during twice a day radiation.
I have been NED since May 2003.
Meds:
2 rounds of A/C
6 rounds of taxtere
Xeloda May 10, 2003- July 30, 2005
Herceptin May 10, 2003 - recent
Pain Meds for nuropathy -
Nurontin, Celebrex, Morphine, Methadone
--- Linda Schmidt <lkschmid yahoo.com> wrote:
> I have a question.
>
> I was diagnosed with IBC October 2005. During my
> chemo, the study came out recommending herceptin for
> her2 positive, early-stage breast cancer for one
> year. So I began receiving it.
>
> In January it will be one year of herceptin
> treatment for me, and I was prepared for it to be
> stopped, although I was a little concerned about
> taking away a drug that is supposed to help keep the
> cancer from coming back. But when I spoke to my
> oncologist yesterday, he said that he was not
> unwilling to continue the herceptin, especially in
> my case. So he will keep me on it for at least two
> more treatments until I see him again in six weeks
> when we'll talk about it some more. He mentioned
> that he was reluctant to take me off something that
> seems to be working.
>
> I had a PET scan in September that came back
> clear. I had an echo in October that was fine. He
> said that he would schedule another PET and another
> echo in January.
>
> I was so surprised by this possibility of
> extending the herceptin treatment that I couldn't
> think of any questions. I'm still not sure what to
> ask.
>
> So, has anyone else in NED status had their
> herceptin extended past the one-year cutoff? If so,
> what did your onc say about it? Any questions you
> think I should ask?
>
> Thanks.
>
> Linda in Texas
>
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