Dear Shirley,
Can I ask you about the lapatinib trial, are all people on
both
herceptin and lapatinib and do you know the doses for each
drug?
I am wondering whether I should be on both together or
whether its
better to use herceptin then change to lapatinib later on.
Fiona
Single mother (43 yrs old) with two daughters 2 year old and
six years
old was living in Bangkok with my own consulting business
when diagnosed
Jan 06 after six months of being told I had mastitis &
blocked milk
ducts (five hospitals, nine doctors two surgeons all got it
wrong
including a breast cancer centre), immediately moved back to
Sydney,
Australia - Stage IV - Mets to Bone T9 & L4, lymph
glands left and right
arm, gland behind breast bone, ER-/PR-/HER2+++ started Chemo
14th Feb 06
- FEC x 1 /Herceptin x 1 then switched to weekly Taxotere
70mg/Herceptin
200mg six weeks on, two weeks herceptin only. Scans done
6/06 great
results, some of my team believe its arthritis at L4 not
cancer and
significant improvement everywhere, double mastectomy done
20/7/06 with
axillary clearance both sides 22 glands from left, 13 from
right, lymph
glands totally clear (yippee), DCIS small pocket found in
left breast,
nothing in right breast, more of the same chemotherapy, Bone
Scan L4
uptake, MRI clear, PET scan clear, radiation twice per days
seven fields
completed 12/06, more chemo planned for the new year.
-----Original Message-----
From: ibc-bounces ibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of Shirley & Clare Beezley
Sent: Wednesday, 20 December 2006 12:25 AM
To: Linda Schmidt
Cc: ibcibcsupport.org
Subject: Re: [ibc] One year of herceptin
Hi Linda, My Onc has kept me on weekly Herceptin for 3
& 1/2 years and
my
inners have remained clear ( I Just have skin met on the
skin only that
are
stubborn).
I attribute my good internal scans to the Herceptin. I'm
glad my doctor
let
me continue. Of course each person is different and needs to
be in
agreement
with their doctor. ( Currently on Herceptin/Lapatinib trial
) Good luck,
Shirley
----- Original Message -----
From: "Linda Schmidt" <lkschmidyahoo.com>
To: "IBC Mailing list x" <ibcibcsupport.org>
Sent: Tuesday, December 19, 2006 10:12 AM
Subject: [ibc] One year of herceptin
>I have a question.
>
> I was diagnosed with IBC October 2005. During my
chemo, the study
came
> out recommending herceptin for her2 positive,
early-stage breast
cancer
> for one year. So I began receiving it.
>
> In January it will be one year of herceptin treatment
for me, and I
was
> prepared for it to be stopped, although I was a little
concerned about
> taking away a drug that is supposed to help keep the
cancer from
coming
> back. But when I spoke to my oncologist yesterday, he
said that he
was
> not unwilling to continue the herceptin, especially in
my case. So he
> will keep me on it for at least two more treatments
until I see him
again
> in six weeks when we'll talk about it some more. He
mentioned that he
was
> reluctant to take me off something that seems to be
working.
>
> I had a PET scan in September that came back clear. I
had an echo in
> October that was fine. He said that he would schedule
another PET and
> another echo in January.
>
> I was so surprised by this possibility of extending
the herceptin
> treatment that I couldn't think of any questions. I'm
still not sure
what
> to ask.
>
> So, has anyone else in NED status had their herceptin
extended past
the
> one-year cutoff? If so, what did your onc say about
it? Any
questions
> you think I should ask?
>
> Thanks.
>
> Linda in Texas
>
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