Hey Heather,
Heather Hoff wrote "What were you on, that had such
wonderful results?"
I on Taxol my signature is below. I am fortunate that it
worked for me I think that is why the Oncs. are so
surprised. Since my pervious post - Lottery ticket - (see
Archives) - there have been posts replies where taxol
hasn't worked for others.
I could write more but with the chemo brain it is really
hard for me at this moment to get my thoughts straight to
make sense.
Keep trying , keep searching,
Season greetings Libby
Started with an itch, breast enlarged over a period of 6
weeks became hot,
> nipple inverted, peau d' orange of skin. 2x2 weeks of
antibiotics no change.
> Dx myself on www.ibcsupport.org - Officially DX July
2002
>
> Core biopsy July 10 right breast er+ pr+ her2 2+
staining (Dako)
> Skin Biopsy July 16 right breast er+ pr- skin
involvement Her2 1+ staining (FSH)
> 3 cycles of (every 3 weeks) FAC stopped treatment - my
choice
> No MRM due to skin involvement
> Recurrence 2003 still local
> A & T A for 4 cycles - T for 6 Cycles
> 12 - Rads with bulbous - stopped treatment - my choice
> 2003- 2004 - chronic fluid retention, & increase of
appetite & lethargy - put on 60 pounds
> 2005 April- DX Mets - to left breast - pericardial
infusion -drain July
> 2005 - > drained again
> 2005 Christmas eve - heart tamponade - ICU incubated -
Operation - pericardial window.
> Pulmonary drains both lungs for 3 weeks - avg 300 mls
per lungs per day
> Xeloda 3000 - 6 mths
> 2006 R lung tapped - June
2006 September Dx Lymphangitis of the lungs - R lung
Drained -
> weekly Taxol 130mls tumour shrinking & softening of
both breast, still
> fluid in pulmonary, home oxygen
2006- October 3 weekly Taxol still 130mls one week off. Off
oxygen
2007 - 3 weekly taxol 110mls one week off
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