Dear April,
You mother can investigate being checked for the breast
cancer gene,
it's a complicated issue whether you are more likely to get
it or not,
my mother had breast cancer post menopausal and the experts
normally
consider that post menopausal and pre menopausal are not
linked, i.e. I
shouldn't have had any higher chance of developing IBC but I
did.
I am getting genetically tested as I have two daughters,
people who have
the genes are at a much higher risk, so for me I want to
know for my
daughters sake (they can then make their own decision on
whether they
are tested or not and what they do, I will write them a
letter saying
get tested but hope by that stage breast cancer has been
wipe out. I
also have a sister with two daughters so its important she
knows.
Fiona
Single mother (44 yrs old) with two daughters 2 year old and
six years
old was living in Bangkok with my own consulting business
when diagnosed
Jan 06 after six months of being told I had mastitis &
blocked milk
ducts (five hospitals, nine doctors two surgeons all got it
wrong
including a breast cancer centre), immediately moved back to
Sydney,
Australia - Stage IV - Mets to Bone T9 & L4, lymph
glands left and right
arm, gland behind breast bone, ER-/PR-/HER2+++ started Chemo
14th Feb 06
- FEC x 1 /Herceptin x 1 then switched to weekly Taxotere
70mg/Herceptin
200mg six weeks on, two weeks herceptin only. Scans done
6/06 great
results, some of my team believe its arthritis at L4 not
cancer and
significant improvement everywhere, double mastectomy done
20/7/06 with
axillary clearance both sides 22 glands from left, 13 from
right, lymph
glands totally clear (yippee), DCIS small pocket found in
left breast,
nothing in right breast, more of the same chemotherapy, Bone
Scan L4
uptake T9 gone, MRI clear, PET scan no active cancer,
radiation twice
per days seven fields completed 12/06, more chemo planned
for the new
year.
________________________________
From: ibc-bounces ibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of April H
Sent: Tuesday, 2 January 2007 1:02 AM
To: ibcibcsupport.org
Subject: [ibc] risk of IBC/BC
Happy New Year to all of you and may 2007 be a wonderful
year. I have a
question. My mom has IBC, diagnosed at age 73 (in 2006). I
have spent
the last 7 months so focused on her medical care, that I am
only now
starting to think about myslef. I know that if a first
degree relative
has breast cancer (lke a mother or sister) a woman is more
likely to get
BC. Is it the same for IBC? For example, because my mom
has IBC, am I
at more of a risk for IBC, as well as regular BC? I keep
meaning to ask
my mom 's doc, and will ask my own next time I go in, but
was just
wondering. I am now so aware of BC and IBC issues I can
sometimes drive
myself a bit crazy thinking about it!  I am 33
years old, no other
BC in family.
Thank you for any info you might be able to give me.
April
________________________________
Get FREE Web site and company branded e-mail from Microsoft
Office Live
<http://g
.msn.com/8HMBENUS/2734??PS=47575>
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
|