Re; My Houston visit

I always thought that if I could get myself into a 1% group
(percentage of bc patients with ibc), I should be able to
get myself
into a 40% group (approximate survival rate when I was
diagnosed).  I
know that doesn't make logical sense, but I found it a
source of hope.

I hope the next chemo is the one that does the trick for
you.

Phyllis in Concord, NC
Diagnosed in 1998, now well and doing fine

On 1/12/07, Dianne Minter <dminter1nc.rr.com> wrote:
> I am home safe and sound.  My friend Elaine was my
rock.  I saw two doctors (right on schedule!) and they were
professional and answered all my questions.  My main concern
was that I was rejected by the IBC Center and they explained
that my cancers were beyond the point where they could help.
 My options at this point are targeted therapies with them
and there's a promising  Phase II trial that I will try when
the time comes.  I will not be eligible if I begin a third
chemo regime here at Duke, so for now, I am to continue my
current treatment until it stops working altogether, at
which time MDA can likely offer me the clinical trial.  They
pulled no punches and stressed that the cancer will spread
further and it is just a matter of time.  The only thing to
do is keep attacking it with new chemos when it gets out of
control. I will have the option to drop one of the three
drugs I'm now getting to ease the side effects somewhat,
knowing that I can add it back.  Each time at 
 ab
>  out day 10 I swear I'll never ever have another
treatment...but I always go back for more.
> Surgery is still to be avoided.  They could never get
all the cancer and I would have to stop chemo in order to
recover. So...here I am plugging away with all your help. 
The only positive thing the doctor told me was that my
receptor status as triple negative does tend to allow chemos
to work about 50% of the time and that those 50% often have
a 50% response.  So...I am one of those.  I'm not throwing
in the towel yet, but it sure does wear a gal out!
> Dianne
>
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>
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