Patti:
Do you thing your daughter would bottle some of that
energy?!!! It is great
to hear how she is doing. Love, Cindy, FL
-----Original Message-----
From: ibc-bounces ibcsupport.org [mailto:ibc-bouncesibcsupport.org] On
Behalf Of ibc-requestibcsupport.org
Sent: Sunday, January 14, 2007 11:33 PM
To: ibcibcsupport.org
Subject: ibc Digest, Vol 37, Issue 25
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When replying, please edit your Subject line so it is more
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Today's Topics:
1. promising update on my little girl (patti bradfield)
2. ibcers in Florida (SunnJcaol.com)
3. Re: promising update on my little gir (Pati Wilson)
4. Fwd: A book - About Alice - that might be of interest
(dly)
5. Re: My Houston visit (Melanie Harwell)
6. Re: promising update on my little girl (Melanie
Harwell)
7. new survivor question (Ruth Coates)
8. Re: promising update on my little girl (Lydia Bond)
9. Re: new survivor question (Phyllis Johnson)
10. Re; [ibc] My Houston visit (Phyllis Johnson)
11. Re: Mary's Latest (Phyllis Johnson)
12. Re: promising update on my little girl (JShelly)
13. Re: Fwd: A book - About Alice - that might be of
interest
(JShelly)
14. Re: promising update on my little girl (patti
bradfield)
15. Re: promising update on my little girl (patti
bradfield)
16. Re: promising update on my little girl (patti
bradfield)
17. Re: promising update on my little gir (patti
bradfield)
18. Re: My Houston visit (rtsmith81optonline.net)
19. Re: promising update on my little girl (rtsmith81optonline.net)
20. Re: Re: leg pain (Judi Beil)
21. Re: Re: leg pain (Dr. Virginia R. Hetrick)
22. Re: RE: my sister (Judi Beil)
------------------------------------------------------------
----------
Message: 1
Date: Sun, 14 Jan 2007 09:42:30 -0800
From: patti bradfield <p.thewriterverizon.net>
Subject: [ibc] promising update on my little girl
To: ibc support <ibcibcsupport.org>
Message-ID: <48643737-D147-4903-A37D-85196D6171D6verizon.net>
Content-Type: text/plain
Hi all,
For those that have asked privately and the messages about
Epirubicin....
My daughter Tina (after 3 years and multiple chemos) is here
with me
today.
I can see that her energy level is very good (she still
works a 5 day
9 hours)
She failed the new drug Halichondrin B, and is now on
Epirubicin and
Herceptin weekly. (premeds are deximethazone and
anti-nausea)
From everything I read from the printouts she got from the
Doctor,
weekly seems to be less heart toxic than every 3 weeks.
Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
up with her, so just an observance.....IBC isn't keeping my
little
girl down....even after 3 years.
All my best to you all
Patti
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
------------------------------
Message: 2
Date: Sun, 14 Jan 2007 13:48:01 EST
From: SunnJcaol.com
Subject: [ibc] ibcers in Florida
To: ibcibcsupport.org
Message-ID: <c8c.74c1c51.32dbd4e1aol.com>
Content-Type: text/plain
Hi Ladies,
Looking for 2 of you who wrote to me but I don't have your
full email
addresses. You are MKiley(Mary Anne) in Miami and kfcma2 in
Davie. Carol
McWilliams
has been working to plan a get together...if you're
interested please
contact
her at mcwillia_cmsn.com
Hope all is well with you.
Sunnie in Florida
[list software deleted text/html attachment]
------------------------------
Message: 3
Date: Sun, 14 Jan 2007 11:27:54 -0800 (PST)
From: Pati Wilson <wcleaningcrew2sbcglobal.net>
Subject: Re: [ibc] promising update on my little gir
To: patti bradfield <p.thewriterverizon.net>, ibc
support
<ibcibcsupport.org>
Message-ID: <20070114192754.66647.qmailweb81008.mail.mud.yahoo.com>
Content-Type: text/plain
HI Patti,
I can't tell you how excited I am for you and your daughter,
Tina. I get so
much hope from your stories of her doing so well. Keep up
the fight! You
are such an inspiration to us all.
Hugs,
Pati in Oakley
----- Original Message ----
From: patti bradfield <p.thewriterverizon.net>
To: ibc support <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 9:42:30 AM
Subject: [ibc] promising update on my little girl
Hi all,
For those that have asked privately and the messages about
Epirubicin....
My daughter Tina (after 3 years and multiple chemos) is here
with me
today.
I can see that her energy level is very good (she still
works a 5 day
9 hours)
She failed the new drug Halichondrin B, and is now on
Epirubicin and
Herceptin weekly. (premeds are deximethazone and
anti-nausea)
>From everything I read from the printouts she got from
the Doctor,
weekly seems to be less heart toxic than every 3 weeks.
Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
up with her, so just an observance.....IBC isn't keeping my
little
girl down....even after 3 years.
All my best to you all
Patti
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
[list software deleted text/html attachment]
------------------------------
Message: 4
Date: Sun, 14 Jan 2007 19:44:48 +0000
From: dly <dydresympatico.ca>
Subject: [ibc] Fwd: A book - About Alice - that might be of
interest
To: ibc support <ibcibcsupport.org>
Message-ID: <13B25FFC-8AE7-4791-B0AE-B15EF9EBE6F9sympatico.ca>
Content-Type: text/plain
You can read the first chapter of this book online here:
FIRST CHAPTER
‘About Alice’
http://www.nytimes.com/2007/01/14/books/chapt
ers/0114-1st-tril.html
dly
dydresympatico.ca
Begin forwarded message:
> From: dly <dydresympatico.ca>
> Date: January 14, 2007 7:20:21 PM GMT
> To: IBCResearch <IBCResearchwww.ibcresearch.org>
> Subject: A book - About Alice - that might be of
interest
>
> Hello Everyone,
>
> Last week I watched Calvin Trillin being interviewed by
Charlie Rose.
>
> He spoke of his wife who lost her battle to cancer on
11 September
> 2001
> (which resonated with me because that is the date I
started
> treatment for IBC)
>
> Alice had lung cancer not IBC which she battled for 25
years in
> spite of the
> very harsh prognosis that was given initially. And
throughout that
> time
> her husband says she was an "advocate" for
those around her in their
> battles with cancer-- so much so that Calvin says he
feared she
> would run
> into problems for practicing medicine without license -
again
> something
> that I could understand having that same incentive to
help.
>
> He mentions that many people advised his wife to treat
her cancer
> with many things - peach pits - for example. He says
that his
> understanding
> of alternative medicine is a doctor not trained at John
Hopkins.
>
> But the main idea of the book is a husband remembering
his wife.
>
> Here is a link to a review. I am just going to see if
this is in
> my bookstore
> or I will order it and thinking especially of all the
husbands who
> participate
> on this site, I thought to bring it to everyone's
attention.
>
> The Charlie Rose interview might also still be found on
some
> website- I think the main
> website features most recent interviews and the
archives might be
> pay for view.
>
> There is also a NYT book review here:
> http://www.nytimes.com/2007/01/14/books/review/St
evenson.t.html
>
> ABOUT ALICE
>
> By Calvin Trillin.
>
> 78 pp. Random House. $14.95.
>
>
>
>
> Donna
> dydresympatico.ca
>
>
>
>
[list software deleted text/html attachment]
------------------------------
Message: 5
Date: Sun, 14 Jan 2007 14:34:01 -0600
From: "Melanie Harwell" <melaniehigiles.net>
Subject: Re: [ibc] My Houston visit
To: "Dianne Minter" <dminter1nc.rr.com>, "ibc" <ibcibcsupport.org>
Message-ID: <000f01c7381b$53a652b0$8e2e9a04Harwell>
Content-Type: text/plain; format=flowed;
charset="iso-8859-1";
reply-type=original
Dianne, you are one tough cookie, seeing the positive side
of everything.
May your 50% likely response turn out to be a 100%
response!
Melanie Harwell
----- Original Message -----
From: "Dianne Minter" <dminter1nc.rr.com>
To: "Pam Nelson" <pjnmswbellsouth.net>;
"Aunt Lee" <quill1alltel.net>;
"Barbara M. Smith" <barbaramunnatlanticbb.net>; "Elaine"
<walkerelainecox.net>; "Jan Kuras"
<jannymichweb.net>; "Diane Breznik"
<jbreznikatlanticbb.net>; "Cheryl Bazzoui"
<wcbazzouiatlanticbb.net>;
<ctbunchnetzero.net>; "John R Kohler"
<greatgamatlanticbb.net>; "Audrey &
Lee Beckes" <audleeatlanticbb.net>;
"NYC Bush Anita"
<Anita.Bushpanalpina.com>; "Nancy"
<ncarsonyahoo.com>; "Becky Conolly"
<bconollyverizon.net>; "Pam Besecker"
<pamatcandhlawyahoo.com>
Cc: <ibcibcsupport.org>
Sent: Friday, January 12, 2007 8:16 PM
Subject: [ibc] My Houston visit
I am home safe and sound. My friend Elaine was my rock. I
saw two doctors
(right on schedule!) and they were professional and answered
all my
questions. My main concern was that I was rejected by the
IBC Center and
they explained that my cancers were beyond the point where
they could help.
My options at this point are targeted therapies with them
and there's a
promising Phase II trial that I will try when the time
comes. I will not
be eligible if I begin a third chemo regime here at Duke, so
for now, I am
to continue my current treatment until it stops working
altogether, at which
time MDA can likely offer me the clinical trial. They
pulled no punches and
stressed that the cancer will spread further and it is just
a matter of
time. The only thing to do is keep attacking it with new
chemos when it
gets out of control. I will have the option to drop one of
the three drugs
I'm now getting to ease the side effects somewhat, knowing
that I can add it
back. Each time at ab
out day 10 I swear I'll never ever have another
treatment...but I always go
back for more.
Surgery is still to be avoided. They could never get all
the cancer and I
would have to stop chemo in order to recover. So...here I am
plugging away
with all your help. The only positive thing the doctor told
me was that my
receptor status as triple negative does tend to allow chemos
to work about
50% of the time and that those 50% often have a 50%
response. So...I am one
of those. I'm not throwing in the towel yet, but it sure
does wear a gal
out!
Dianne
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
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------------------------------
Message: 6
Date: Sun, 14 Jan 2007 14:43:56 -0600
From: "Melanie Harwell" <melaniehigiles.net>
Subject: Re: [ibc] promising update on my little girl
To: "patti bradfield" <p.thewriterverizon.net>, "ibc"
<ibcibcsupport.org>
Message-ID: <002a01c7381c$b66b17e0$8e2e9a04Harwell>
Content-Type: text/plain; format=flowed;
charset="iso-8859-1";
reply-type=original
Patti,
Tell that girl she is something else!!!!
Melanie Harwell
----- Original Message -----
From: "patti bradfield" <p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 11:42 AM
Subject: [ibc] promising update on my little girl
Hi all,
For those that have asked privately and the messages about
Epirubicin....
My daughter Tina (after 3 years and multiple chemos) is here
with me
today.
I can see that her energy level is very good (she still
works a 5 day
9 hours)
She failed the new drug Halichondrin B, and is now on
Epirubicin and
Herceptin weekly. (premeds are deximethazone and
anti-nausea)
From everything I read from the printouts she got from the
Doctor,
weekly seems to be less heart toxic than every 3 weeks.
Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
up with her, so just an observance.....IBC isn't keeping my
little
girl down....even after 3 years.
All my best to you all
Patti
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
------------------------------
Message: 7
Date: Sun, 14 Jan 2007 15:53:38 -0500
From: Ruth Coates <racoatesbtc-bci.com>
Subject: [ibc] new survivor question
To: ibcibcsupport.org
Message-ID: <45AA9852.6040604btc-bci.com>
Content-Type: text/plain
<>Ok, so here's a newbie question...if you don't have
more scans and
tests, how do you know if you have any mets elsewhere?
Initially, I had
clear scans, no mets elsewhere in the body, but grossly
positive nodes
which says that cells could have gotten away. No one has
said anything
to me about future tests or scans, only about blood counts
right now.
I'm an RN, but knowing about medicine isn't always living
it. I am
thinking that I'll feel something (ie. pain, fatigue,
something not
right, whatever) one day and not know if it's something to
bother my Dr
about or just me. <>
I'm having bilateral MRM Wednesday and am so afraid that
they will miss
something or not get enough tissue to have clear margins.
I have had 2
previous surgeries that did not get clear margins. I have a
new
surgeon, one who believes in my diagnosis, so that's a plus!
I still
have a very large red area on my RT Breast, and it is still
painful
(achy). I'll be glad to get rid of it!
Mainly this is just a down time, and anticipation is more
often worse
than the reality of the situation. Just wish the tears
would go away
for awhile.
Ruth
[list software deleted text/html attachment]
------------------------------
Message: 8
Date: Sun, 14 Jan 2007 15:55:17 -0500
From: "Lydia Bond" <lmbondschaffner.net>
Subject: Re: [ibc] promising update on my little girl
To: "patti bradfield" <p.thewriterverizon.net>, "ibc support"
<ibcibcsupport.org>
Message-ID: <002001c7381e$4e8609d0$6101a8c0CAIBE>
Content-Type: text/plain; format=flowed;
charset="iso-8859-1";
reply-type=original
And to think I get get tired just reading about all she
does!!!
Lydia In Louisville
----- Original Message -----
From: "patti bradfield" <p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 12:42 PM
Subject: [ibc] promising update on my little girl
> Hi all,
>
> For those that have asked privately and the messages
about
> Epirubicin....
>
> My daughter Tina (after 3 years and multiple chemos) is
here with me
> today.
> I can see that her energy level is very good (she still
works a 5 day
> 9 hours)
>
> She failed the new drug Halichondrin B, and is now on
Epirubicin and
> Herceptin weekly. (premeds are deximethazone and
anti-nausea)
> From everything I read from the printouts she got from
the Doctor,
> weekly seems to be less heart toxic than every 3
weeks.
>
> Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
> up with her, so just an observance.....IBC isn't
keeping my little
> girl down....even after 3 years.
>
> All my best to you all
> Patti
>
> The people who get on in this world are the people who
get up and
> look for the circumstances they want,
> and, if they can't find them, make them. (George
Bernard Shaw)
>
> patti bradfield
> Redmond, WA
> www.phbservices.com
>
>
>
>
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
------------------------------
Message: 9
Date: Sun, 14 Jan 2007 17:18:06 -0500
From: "Phyllis Johnson" <phyllishjgmail.com>
Subject: Re: [ibc] new survivor question
To: "Ruth Coates" <racoatesbtc-bci.com>
Cc: ibcibcsupport.org
Message-ID:
<511a7b9e0701141418g507d4bf8h67a95f72fe4c011bmail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
If a doctor says no scans are planned, that usually means no
ROUTINE
scans are planned simply because it has been a year since
the last
one. Most doctors are going to do quarterly physical exams
and blood
work. Many times cancer that has spread is going to affect
the organ
it has spread to and show in the blood work. And the
physical exam
can find swelling in the lymph nodes and/or liver, hear lung
problems,
and get a feel for the patient's overall health. If the
blood work or
physical exam shows a problem, then scans and/or biopsies
are ordered
to get a better look.
For example, once my blood work showed a slight elevation of
alkaline
phosphatase (sp?), and the very next day, I was in the lab
having a
bone scan because elevated alkaline phosphatase can indicate
bone
mets. Fortunately, the scan showed everything was OK, and
on my next
blood test, everything was normal.
Doctors who follow this philosophy point to studies that
show no
increase in survival rates with routine scans. Others are
concerned
about the stress of waiting for results for the patient,
wise use of
medical resources that may be limited in some communities,
and/or the
possibility that overuse of scans may itself be risky
because so many
of them rely on radiation. We do have folks on our list
whose mets
were discovered on routine scans, who feel they are an
important part
of follow-up care.
If your doctor doesn't use routine scans, it is especially
important
to let your doctor know about any aches and pains that might
be
symptoms of mets.
There will be a pathology report after your surgery that
will give
additional information.
Many people who are initially concerned that their doctors
don't
routinely scan, find that they have quite enough tests,
thank you, in
practice. Sometimes it seemed to me that if my little
toenail hurt,
the doc was ordering an MRI. 
One concern I have is increasingly tight insurance policies
about
scans. My insurance now requires preapproval of scans for
outpatients. If that policy had been in effect when I was
in
treatment, I don't know how long it would have taken to get
that
preapproval, which would have been a terrible source of
anxiety.
I hope all goes well with your surgery.
Phyllis in Concord, NC
Diagnosed in 1998, Her2neu pos, ER neg
AC, MRM (16 pos lymph nodes), Taxol, Rads completed Jan. 15,
1999
Now well and doing fine
On 1/14/07, Ruth Coates <racoatesbtc-bci.com> wrote:
> <>Ok, so here's a newbie question...if you don't
have more scans and
> tests, how do you know if you have any mets elsewhere?
Initially, I had
> clear scans, no mets elsewhere in the body, but grossly
positive nodes
> which says that cells could have gotten away. No one
has said anything
> to me about future tests or scans, only about blood
counts right now.
> I'm an RN, but knowing about medicine isn't always
living it. I am
> thinking that I'll feel something (ie. pain, fatigue,
something not
> right, whatever) one day and not know if it's something
to bother my Dr
> about or just me. <>
>
> I'm having bilateral MRM Wednesday and am so afraid
that they will miss
> something or not get enough tissue to have clear
margins. I have had 2
> previous surgeries that did not get clear margins. I
have a new
> surgeon, one who believes in my diagnosis, so that's a
plus! I still
> have a very large red area on my RT Breast, and it is
still painful
> (achy). I'll be glad to get rid of it!
>
> Mainly this is just a down time, and anticipation is
more often worse
> than the reality of the situation. Just wish the tears
would go away
> for awhile.
>
> Ruth
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
------------------------------
Message: 10
Date: Sun, 14 Jan 2007 17:29:23 -0500
From: "Phyllis Johnson" <phyllishjgmail.com>
Subject: Re; [ibc] My Houston visit
To: "Dianne Minter" <dminter1nc.rr.com>
Cc: ibc <ibcibcsupport.org>
Message-ID:
<511a7b9e0701141429mdccbf06q93017be8e4423955mail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
I always thought that if I could get myself into a 1% group
(percentage of bc patients with ibc), I should be able to
get myself
into a 40% group (approximate survival rate when I was
diagnosed). I
know that doesn't make logical sense, but I found it a
source of hope.
I hope the next chemo is the one that does the trick for
you.
Phyllis in Concord, NC
Diagnosed in 1998, now well and doing fine
On 1/12/07, Dianne Minter <dminter1nc.rr.com> wrote:
> I am home safe and sound. My friend Elaine was my
rock. I saw two
doctors (right on schedule!) and they were professional and
answered all my
questions. My main concern was that I was rejected by the
IBC Center and
they explained that my cancers were beyond the point where
they could help.
My options at this point are targeted therapies with them
and there's a
promising Phase II trial that I will try when the time
comes. I will not
be eligible if I begin a third chemo regime here at Duke, so
for now, I am
to continue my current treatment until it stops working
altogether, at which
time MDA can likely offer me the clinical trial. They
pulled no punches and
stressed that the cancer will spread further and it is just
a matter of
time. The only thing to do is keep attacking it with new
chemos when it
gets out of control. I will have the option to drop one of
the three drugs
I'm now getting to ease the side effects somewhat, knowing
that I can add it
back. Each time at
ab
> out day 10 I swear I'll never ever have another
treatment...but I always
go back for more.
> Surgery is still to be avoided. They could never get
all the cancer and I
would have to stop chemo in order to recover. So...here I am
plugging away
with all your help. The only positive thing the doctor told
me was that my
receptor status as triple negative does tend to allow chemos
to work about
50% of the time and that those 50% often have a 50%
response. So...I am one
of those. I'm not throwing in the towel yet, but it sure
does wear a gal
out!
> Dianne
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
------------------------------
Message: 11
Date: Sun, 14 Jan 2007 17:32:18 -0500
From: "Phyllis Johnson" <phyllishjgmail.com>
Subject: Re: [ibc] Mary's Latest
To: "M. F. Meister" <GAMMFMsssnet.com>
Cc: ibc <ibcibcsupport.org>
Message-ID:
<511a7b9e0701141432l488be467g9967649f399840ecmail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Dear Mary,
I also had a lipoma removed (from my arm on the MRM side)
and sweated
out the time from surgery until the the path report came
back.
Fortunately, in my case, the surgeon was pretty sure it was
harmless
even before he did the surgery. I can't tell you how many
times I've
heard a doc say, "Well, normally we'd just watch this,
but with YOUR
medical history, we need to . . . . "
I hope all goes well with the radiation. I'll keep you,
your family,
and your medical team in my prayers.
Phyllis in Concord, NC
On 1/13/07, M. F. Meister <gammfmsssnet.com> wrote:
> Hello,
>
> I promised that I would try to get back to you soon on
a little bit more
of
> an update on me and what has transpired lately health
wise & etc. I
wanted
> to get back to you - finally - and thank you again as
well so much for
your
> kind words, your thoughts & prayers regarding all
that I have been going
> through...
>
> Well, I just got some news back the later part of the
week on the results
of
> the out-patient surgery that I had at Aultman a week
ago Friday (1/5) to
> have the growth removed from the back of my right knee.
As I had
mentioned,
> the surgeon did not like the situation prior to surgery
with the growth &
> did not like the way it looked at all when he removed
it, so he told us
that
> he thought it was cancerous. He has been a surgeon for
a long time & is
> very experienced and knowledgeable when it comes to
things like that.
That
> would seem logical too for it to be cancerous
considering my having had
> breast cancer for the last 4 plus years... It must
have been a miracle
> that stemmed from all the prayers that people were
saying for me when I
was
> in surgery (I am not getting on a religion soap box - I
am just very
> thankful) because it turned out not to be cancerous at
all. The pathology
> report came back saying that it was a lipoma, which is
a big word for a
> fatty tumor. So I am very relieved obviously.
> Fondly,
> Mary M. - Ohio
> [list software deleted text/html attachment]
>
>
> [list software deleted image/gif attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
------------------------------
Message: 12
Date: Sun, 14 Jan 2007 15:28:22 -0800
From: "JShelly" <vshellycomcast.net>
Subject: Re: [ibc] promising update on my little girl
To: "ibc support" <ibcibcsupport.org>
Message-ID: <003c01c73833$aedfab50$6501a8c0jshelly>
Content-Type: text/plain; charset="iso-8859-1"
Glad to hear Tina is doing so well! BTW, she didn't fail
the Halichondrin B
drug...it failed her! Wish I had her energy!! Best wishes
to you both.
Jean, 57, No. Calif.
----- Original Message -----
From: "patti bradfield" <p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 9:42 AM
Subject: [ibc] promising update on my little girl
> Hi all,
>
> For those that have asked privately and the messages
about
> Epirubicin....
>
> My daughter Tina (after 3 years and multiple chemos) is
here with me
> today.
> I can see that her energy level is very good (she still
works a 5 day
> 9 hours)
>
> She failed the new drug Halichondrin B, and is now on
Epirubicin and
> Herceptin weekly. (premeds are deximethazone and
anti-nausea)
> From everything I read from the printouts she got from
the Doctor,
> weekly seems to be less heart toxic than every 3
weeks.
>
> Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
> up with her, so just an observance.....IBC isn't
keeping my little
> girl down....even after 3 years.
>
> All my best to you all
> Patti
>
> The people who get on in this world are the people who
get up and
> look for the circumstances they want,
> and, if they can't find them, make them. (George
Bernard Shaw)
>
> patti bradfield
> Redmond, WA
> www.phbservices.com
>
>
>
>
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
------------------------------
Message: 13
Date: Sun, 14 Jan 2007 15:42:42 -0800
From: "JShelly" <vshellycomcast.net>
Subject: Re: [ibc] Fwd: A book - About Alice - that might be
of
interest
To: "ibc support" <ibcibcsupport.org>
Message-ID: <004801c73835$b14c53a0$6501a8c0jshelly>
Content-Type: text/plain; charset="iso-8859-1"
Donna, thanks so much for sharing this link with us. I can
see that I am
going to have to check out all of his books, including
"About Alice."
Jean, 57, No. Calif.
----- Original Message -----
From: "dly" <dydresympatico.ca>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 11:44 AM
Subject: [ibc] Fwd: A book - About Alice - that might be of
interest
> You can read the first chapter of this book online
here:
>
> FIRST CHAPTER
> 'About Alice'
>
>
> http://www.nytimes.com/2007/01/14/books/chapt
ers/0114-1st-tril.html
> dly
> dydresympatico.ca
>
>
>
> Begin forwarded message:
>
> > From: dly <dydresympatico.ca>
> > Date: January 14, 2007 7:20:21 PM GMT
> > To: IBCResearch <IBCResearchwww.ibcresearch.org>
> > Subject: A book - About Alice - that might be of
interest
> >
> > Hello Everyone,
> >
> > Last week I watched Calvin Trillin being
interviewed by Charlie Rose.
> >
> > He spoke of his wife who lost her battle to cancer
on 11 September
> > 2001
> > (which resonated with me because that is the date
I started
> > treatment for IBC)
> >
> > Alice had lung cancer not IBC which she battled
for 25 years in
> > spite of the
> > very harsh prognosis that was given initially.
And throughout that
> > time
> > her husband says she was an "advocate"
for those around her in their
> > battles with cancer-- so much so that Calvin says
he feared she
> > would run
> > into problems for practicing medicine without
license - again
> > something
> > that I could understand having that same incentive
to help.
> >
> > He mentions that many people advised his wife to
treat her cancer
> > with many things - peach pits - for example. He
says that his
> > understanding
> > of alternative medicine is a doctor not trained at
John Hopkins.
> >
> > But the main idea of the book is a husband
remembering his wife.
> >
> > Here is a link to a review. I am just going to
see if this is in
> > my bookstore
> > or I will order it and thinking especially of all
the husbands who
> > participate
> > on this site, I thought to bring it to everyone's
attention.
> >
> > The Charlie Rose interview might also still be
found on some
> > website- I think the main
> > website features most recent interviews and the
archives might be
> > pay for view.
> >
> > There is also a NYT book review here:
> > http://www.nytimes.com/2007/01/14/books/review/St
evenson.t.html
> >
> > ABOUT ALICE
> >
> > By Calvin Trillin.
> >
> > 78 pp. Random House. $14.95.
> >
> >
> >
> >
> > Donna
> > dydresympatico.ca
> >
> >
> >
> >
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
------------------------------
Message: 14
Date: Sun, 14 Jan 2007 17:06:18 -0800
From: patti bradfield <p.thewriterverizon.net>
Subject: Re: [ibc] promising update on my little girl
To: "JShelly" <vshellycomcast.net>
Cc: ibc support <ibcibcsupport.org>
Message-ID: <33638010-581D-4E2A-AEF6-6F4D681239F5verizon.net>
Content-Type: text/plain
You are right about that.......
On Jan 14, 2007, at 3:28 PM, JShelly wrote:
Glad to hear Tina is doing so well! BTW, she didn't fail
the
Halichondrin B
drug...it failed her! Wish I had her energy!! Best wishes
to you both.
Jean, 57, No. Calif.
----- Original Message -----
From: "patti bradfield" <p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 9:42 AM
Subject: [ibc] promising update on my little girl
> Hi all,
>
> For those that have asked privately and the messages
about
> Epirubicin....
>
> My daughter Tina (after 3 years and multiple chemos) is
here with me
> today.
> I can see that her energy level is very good (she still
works a 5 day
> 9 hours)
>
> She failed the new drug Halichondrin B, and is now on
Epirubicin and
> Herceptin weekly. (premeds are deximethazone and
anti-nausea)
> From everything I read from the printouts she got from
the Doctor,
> weekly seems to be less heart toxic than every 3
weeks.
>
> Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
> up with her, so just an observance.....IBC isn't
keeping my little
> girl down....even after 3 years.
>
> All my best to you all
> Patti
>
> The people who get on in this world are the people who
get up and
> look for the circumstances they want,
> and, if they can't find them, make them. (George
Bernard Shaw)
>
> patti bradfield
> Redmond, WA
> www.phbservices.com
>
>
>
>
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
------------------------------
Message: 15
Date: Sun, 14 Jan 2007 17:09:50 -0800
From: patti bradfield <p.thewriterverizon.net>
Subject: Re: [ibc] promising update on my little girl
To: "Lydia Bond" <lmbondschaffner.net>
Cc: ibc support <ibcibcsupport.org>
Message-ID: <B143F301-052E-42D4-8512-B1447703145Bverizon.net>
Content-Type: text/plain
Me too
On Jan 14, 2007, at 12:55 PM, Lydia Bond wrote:
And to think I get get tired just reading about all she
does!!!
Lydia In Louisville
----- Original Message ----- From: "patti
bradfield"
<p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 12:42 PM
Subject: [ibc] promising update on my little girl
> Hi all,
> For those that have asked privately and the messages
about
> Epirubicin....
> My daughter Tina (after 3 years and multiple chemos) is
here with
> me today.
> I can see that her energy level is very good (she still
works a 5
> day 9 hours)
> She failed the new drug Halichondrin B, and is now on
Epirubicin
> and Herceptin weekly. (premeds are deximethazone and
anti-nausea)
> From everything I read from the printouts she got from
the Doctor,
> weekly seems to be less heart toxic than every 3
weeks.
> Side Bar: We shopped till we dropped yesterday, and I
couldn't
> keep up with her, so just an observance.....IBC isn't
keeping my
> little
> girl down....even after 3 years.
> All my best to you all
> Patti
> The people who get on in this world are the people who
get up and
> look for the circumstances they want,
> and, if they can't find them, make them. (George
Bernard Shaw)
> patti bradfield
> Redmond, WA
> www.phbservices.com
> [list software deleted text/html attachment]
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
------------------------------
Message: 16
Date: Sun, 14 Jan 2007 17:10:05 -0800
From: patti bradfield <p.thewriterverizon.net>
Subject: Re: [ibc] promising update on my little girl
To: "Melanie Harwell" <melaniehigiles.net>
Cc: ibc <ibcibcsupport.org>
Message-ID: <D00CFF22-D066-43BF-8DAB-88675A31EC2Dverizon.net>
Content-Type: text/plain
Shall do......
On Jan 14, 2007, at 12:43 PM, Melanie Harwell wrote:
Patti,
Tell that girl she is something else!!!!
Melanie Harwell
----- Original Message ----- From: "patti
bradfield"
<p.thewriterverizon.net>
To: "ibc support" <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 11:42 AM
Subject: [ibc] promising update on my little girl
Hi all,
For those that have asked privately and the messages about
Epirubicin....
My daughter Tina (after 3 years and multiple chemos) is here
with me
today.
I can see that her energy level is very good (she still
works a 5
day 9 hours)
She failed the new drug Halichondrin B, and is now on
Epirubicin and
Herceptin weekly. (premeds are deximethazone and
anti-nausea)
From everything I read from the printouts she got from the
Doctor,
weekly seems to be less heart toxic than every 3 weeks.
Side Bar: We shopped till we dropped yesterday, and I
couldn't
keep up with her, so just an observance.....IBC isn't
keeping my little
girl down....even after 3 years.
All my best to you all
Patti
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
------------------------------
Message: 17
Date: Sun, 14 Jan 2007 17:15:47 -0800
From: patti bradfield <p.thewriterverizon.net>
Subject: Re: [ibc] promising update on my little gir
To: Pati Wilson <wcleaningcrew2sbcglobal.net>
Cc: ibc support <ibcibcsupport.org>
Message-ID: <8C141653-1CE6-49A3-938D-30CA8D77E249verizon.net>
Content-Type: text/plain
Thank you Pati, makes me want to stay in this fight for the
long term.
You are all my inspiration
God Bless
Patti
On Jan 14, 2007, at 11:27 AM, Pati Wilson wrote:
HI Patti,
I can't tell you how excited I am for you and your daughter,
Tina. I
get so much hope from your stories of her doing so well.
Keep up the
fight! You are such an inspiration to us all.
Hugs,
Pati in Oakley
----- Original Message ----
From: patti bradfield <p.thewriterverizon.net>
To: ibc support <ibcibcsupport.org>
Sent: Sunday, January 14, 2007 9:42:30 AM
Subject: [ibc] promising update on my little girl
Hi all,
For those that have asked privately and the messages about
Epirubicin....
My daughter Tina (after 3 years and multiple chemos) is here
with me
today.
I can see that her energy level is very good (she still
works a 5 day
9 hours)
She failed the new drug Halichondrin B, and is now on
Epirubicin and
Herceptin weekly. (premeds are deximethazone and
anti-nausea)
From everything I read from the printouts she got from the
Doctor,
weekly seems to be less heart toxic than every 3 weeks.
Side Bar: We shopped till we dropped yesterday, and I
couldn't keep
up with her, so just an observance.....IBC isn't keeping my
little
girl down....even after 3 years.
All my best to you all
Patti
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
--
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
** http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html
The people who get on in this world are the people who get
up and
look for the circumstances they want,
and, if they can't find them, make them. (George Bernard
Shaw)
patti bradfield
Redmond, WA
www.phbservices.com
[list software deleted text/html attachment]
------------------------------
Message: 18
Date: Mon, 15 Jan 2007 01:18:22 +0000 (GMT)
From: rtsmith81optonline.net
Subject: Re: [ibc] My Houston visit
To: Dianne Minter <dminter1nc.rr.com>
Cc: IBC Support <ibcibcsupport.org>
Message-ID: <f82db6385491.45aad65eoptonline.net>
Content-Type: text/plain
Hello Dianne,
Well, you are a shining example of my argument against a
negative attitude.
When the "experts" tell up that a positive
attitude will not cure cancer my
reply is "How much better off will we be with a
negative attitude?" Got
to give it to the MDA guys, although they did not give you a
bunch of
flowery stuff, they did tell you what they very truly
believe but at the
same time, I feel as if they gave you some encouragement.
So it looks like you are in this thing for the long haul and
I can see you
are one trooper. Sure, it wears you down but even through
this old computer
line, I can see the spark in your eye and spirit in your
heart. Don't forget
us when you feel down. That's what support is all about.
What are we on
this group now, 500? 600? Well, that's 600 of us routing
for you. Like
they say" If one falls down all the others can lift her
up as long as we all
hold hands.
Don't throw in that towel yet. Hay: our silver bullet could
be right around
the corner.
God bless you my dear little sister. You are in my thoughts
and prayers.
Rich in NJ.
----- Original Message -----
From: Dianne Minter
Date: Saturday, January 13, 2007 11:26 pm
Subject: [ibc] My Houston visit
To: Pam Nelson , Aunt Lee , "Barbara M. Smith" ,
Elaine , Jan Kuras , Diane
Breznik , Cheryl Bazzoui , ctbunchnetzero.net, John R Kohler
, Audrey & Lee
Beckes , NYC Bush Anita , Nancy , Becky Conolly , Pam
Besecker
Cc: ibcibcsupport.org
> I am home safe and sound. My friend Elaine was my rock.
I saw
> two doctors (right on schedule!) and they were
professional and
> answered all my questions. My main concern was that I
was
> rejected by the IBC Center and they explained that my
cancers
> were beyond the point where they could help. My options
at this
> point are targeted therapies with them and there's a
promising
> Phase II trial that I will try when the time comes. I
will not
> be eligible if I begin a third chemo regime here at
Duke, so for
> now, I am to continue my current treatment until it
stops
> working altogether, at which time MDA can likely offer
me the
> clinical trial. They pulled no punches and stressed
that the
> cancer will spread further and it is just a matter of
time. The
> only thing to do is keep attacking it with new chemos
when it
> gets out of control. I will have the option to drop one
of the
> three drugs I'm now getting to ease the side effects
somewhat,
> knowing that I can add it back. Each time at ab
> out day 10 I swear I'll never ever have another
treatment...but
> I always go back for more.
> Surgery is still to be avoided. They could never get
all the
> cancer and I would have to stop chemo in order to
recover.
> So...here I am plugging away with all your help. The
only
> positive thing the doctor told me was that my receptor
status as
> triple negative does tend to allow chemos to work about
50% of
> the time and that those 50% often have a 50% response.
So...I
> am one of those. I'm not throwing in the towel yet, but
it sure
> does wear a gal out!
> Dianne
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
[list software deleted text/html attachment]
------------------------------
Message: 19
Date: Mon, 15 Jan 2007 01:24:42 +0000 (GMT)
From: rtsmith81optonline.net
Subject: Re: [ibc] promising update on my little girl
To: patti bradfield <p.thewriterverizon.net>
Cc: ibc support <ibcibcsupport.org>
Message-ID: <e16b9b062f94.45aad7daoptonline.net>
Content-Type: text/plain
Hi Patti,
There is no wonder why IBC isn't getting Tina down: Just
look at her
Mother!!! Glad I wasn't on that shopping trip with you two,
I'd dropped out
half way through. If I made it that far.
It is good to hear that she is doing well. Go get um
Tina!!!!
Rich in NJ.
----- Original Message -----
From: patti bradfield
Date: Sunday, January 14, 2007 12:42 pm
Subject: [ibc] promising update on my little girl
To: ibc support
> Hi all,
>
> For those that have asked privately and the messages
about
> Epirubicin....
>
> My daughter Tina (after 3 years and multiple chemos) is
here
> with me
> today.
> I can see that her energy level is very good (she still
works a
> 5 day
> 9 hours)
>
> She failed the new drug Halichondrin B, and is now on
Epirubicin
> and
> Herceptin weekly. (premeds are deximethazone and
anti-nausea)
> From everything I read from the printouts she got from
the
> Doctor,
> weekly seems to be less heart toxic than every 3
weeks.
>
> Side Bar: We shopped till we dropped yesterday, and I
couldn't
> keep
> up with her, so just an observance.....IBC isn't
keeping my little
> girl down....even after 3 years.
>
> All my best to you all
> Patti
>
> The people who get on in this world are the people who
get up
> and
> look for the circumstances they want,
> and, if they can't find them, make them. (George
Bernard Shaw)
>
> patti bradfield
> Redmond, WA
> www.phbservices.com
>
>
>
>
>
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
[list software deleted text/html attachment]
------------------------------
Message: 20
Date: Sun, 14 Jan 2007 19:48:37 -0800 (PST)
From: Judi Beil <judibsbcglobal.net>
Subject: Re: [ibc] Re: leg pain
To: BEBIRDaol.com, ibcibcsupport.org
Message-ID: <902720.46383.qmweb81114.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1
I take shots of Neupogen. They always make my groin area and
my legs achey
and
tired, but has been very successful in keeping my white
count at good
levels. I gave
myself 10 shots (one a day) after my first 2 rounds of AC.
Then my onc doc
cut it
back to 7 days/shots for round 3, none for round 4, and the
achiness
gradually
lessened. I just started Taxol on 1/4 after surgery, and now
I'm at 5
days/shots
after each treatment and the symptoms came back. I'm
hoping/expecting when I
finish
chemo, these pains will go away.
judi
--- BEBIRDaol.com wrote:
> In a message dated 1/10/2007 12:01:55 PM Eastern
Standard Time,
> ibc-requestibcsupport.org writes:
> Hello All,
>
> I received my first treatment of Taxol on Friday
1/05/06. After my first
> for treatments and after the treatment on Friday I
received a lunesta (not
> sure of the spelling) shot to increase my white blood
count. This Sunday,
> Monday, Tuesday and today I am experiencing shoting
pains in my thighs and
> hips. Has anyone else had this happen to them and if
so how long did it
> last.
>
> Thanks
>
> Karla
> Dear Karla
>
> I believe you had Neulasta. I had a similar shot of
Heupogen. I felt
terrible
> leg pains thlized it was my bone marrow producing what
I needed to keep my
> counts good. For me it lasted about 4 days. Hope this
helps
>
> Betsy Stang
>
> [list software deleted text/html attachment]
>
> --
> ** List address: ibcibcsupport.org
> ** Information - subscribe, unsubscribe, archives,
etc.:
> ** http://www.ibcsupport
.org/list/
> ** Donations: http://www.i
bcsupport.org/donations.html
>
------------------------------
Message: 21
Date: Sun, 14 Jan 2007 20:34:15 -0800
From: "Dr. Virginia R. Hetrick" <drjuicegte.net>
Subject: Re: [ibc] Re: leg pain
To: ibcibcsupport.org
Message-ID: <45AB0447.2060705gte.net>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Hi, folks -
In case you wondered ....
Why many people have significant pain in their hips, long
bones, and/or
vertabrae when getting Neupogen or Neulasta is that both
meds force stem
cells out of your bone marrow at a rate that's medically
acceptable but
faster than your body normally shoots those little puppies
out of your
bone marrow. To get from the marrow out to your blood
stream is kinda
complicated (not putting anybody down, I just don't have
time to explain
right now) and results in the bone pain.
***NOTE: BEWARE! INCREDIBLY GRAPHIC DESCRIPTION
FOLLOWS!***
Why it's mostly these particular bones is that we have the
most marrow
in the biggest bones. When the docs use actual bone marrow
for
transplants, they actually bore holes into the iliac crest
(top of the
"hip bone" above your butt) and suck the bone
marrow out with a vacuum
device. That's because they can get the most bang for each
bore there
since the most marrow is there, relatively speaking.
***END INCREDIBLY GRAPHIC DESCRIPTION***
HTH.
v
--
/ Virginia R. Hetrick, here in sunny California
0 Email: drjuicegte.net
Oo "There is always hope."
My fave: http:
//www.washington.edu/cambots/camera1_l.gif
------------------------------
Message: 22
Date: Sun, 14 Jan 2007 20:33:09 -0800 (PST)
From: Judi Beil <judibsbcglobal.net>
Subject: Re: [ibc] RE: my sister
To: Susan Guerrieri <frizzle530yahoo.com>, ibcibcsupport.org
Message-ID: <20070115043309.83450.qmailweb81111.mail.mud.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1
Dear Terri,
I was in shock, too, that the covering doctor would make
such a statement.
HE
SHOULD BE SHOT! Seriously, though, I would tell your sister
to NEVER see
this doctor
again, let her onc doc know what an insensitive jerk his
partner is, and
make it
clear that you don't buy into the "she only has two
years" crap!!!! There is
hope.
Don't let the beast take that away from you.
Praying for your sister and your family,
judi
--- Susan Guerrieri <frizzle530yahoo.com> wrote:
> Terri,
> I just have to say something that's been bothering me
since I read your
e-mail
> about your sister's doctor. I realize that he was a
covering doctor, but
how dare
> him!!!!! I spend so much time reading information to
make me feel
positive about
> my illness and to have a doctor make such a godlike
statement about her
lifespan.
> There are so many survival stories, people that beat
the odds. What would
his
> motive be other than bring your sister down to the
lowest of lows??!!
> I was just talking to a woman who's 25 year old
mentally challenged
daughter has
> breast cancer. The first doctor was so filled with
doom that she left him
and
> went to someone else who was enthusiastic and ready for
the challenge. Now
the
> family can approach her treatment with a positive
outlook. I hope your
sister's
> regular oncologist has a better attitude. I was
reading about a man who
had a
> very rare and aggressive cancer. He was told that more
than half the
people who
> had this cancer died within eight months. He
immediately went into a
depression.
> Once he got hold of himself he researched further and
found out that if
the
> patient didn't die in eight months he could live for
many years. That one
> sentence gave him the spirit to fight and in the end he
won. I don't know
if you
> ever read the book "The Lord's Prayer and
Cancer" by Greg Anderson, but
his lung
> cancer was so badly metastised that when the surgeon
opened him he took
one look
> and closed him up and said
> "I'm sorry but there's nothing I can do, you have
30 days to live." Well
he
> began to pray like he never prayed and he was
determined not to die.
Twenty five
> years later he is alive and kicking helping other
cancer patients survive.
I have
> my days when I feel like I am doomed and I am so scared
and worried about
my
> future, but I just keep reading and remembering all the
wonderful stories
about
> survivors and it gets me back on track. Your sister
needs to surround
herself
> with hope. I try to stay away from negative people. I
have had more then
my
> share of conversations with people who for some reason
think I want to
know about
> their aunt or sister who had breast cancer but now they
are dead??!!!
> I will be praying for your sister and your family.
Be strong. God
bless.
> Sue
> NY
>
>
> Terri Gallagher <terrigallgmail.com> wrote:
> To all,
>
>
> Thank you for all your kind words. The day I sent the
original letter we
> were all shocked and devastated. But, we, including my
sister, have pulled
> up our boot straps and are back in the saddle. Barbara,
funny that you
> would mention the roller coaster because that is
exactly what my sister
said
> to us. "Time to get off the platform and back on
the roller coaster once
> again". She is an amazing woman who fought with
determination and who I
> know will do it again. I don't think she is ready to
join this group yet
> but I will definately let her know about all your kind
words,
encouragement,
> and support.
>
> To answer some of your questions:
>
> When she discovered the lump on her neck, they first
did a CT scan which
> showed enlarged lymph nodes, then the Pet scan showed
something suspicious
> and a change from the last Pet but still not
conclusive. Therefore, they
> did the biopsy which was "proof positive".
>
> She begins Taxatere on the 19th and hopefully Avastin.
(apparently, the
> avastin is not FDA approved yet and the insurance may
not pay.) But,
> we will fight.
>
> Thank you too, for the CancerHopeNetwork information. I
will look into
that
> as well.
>
> My thoughts and prayers are with all of you.
>
> Terri
>
> [list software deleted text/html attachment]
>
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End of ibc Digest, Vol 37, Issue 25
***********************************
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