sister has ibc, new to site

Barb has explained things very clearly -- and this has
pretty much been  my 
experience as well.  Although, they could not do the surgery
on me,  for the 
reasons cited by Barb.  I am on chemo again and it is my
hope,  however, that I 
can shrink the supra clav lymph node down so that either
surgery  or perhaps, 
proton therapy, would be an option.  To date, my cancer has 
been quite slow 
growing so my thinking is that if we could get to a NED 
status again, I should 
have a good period of time when I might not have to be on 
chemo.  Having 
said that, I do believe that chemo is pretty much the means 
of controlling my 
IBC.  
 
Sue, Portland, Or.
 
 
Dx  7/01 at age 57, 4 A-C, MRM, 16/17 lymph nodes; ER-, PR-
and Her2-; 2 more 
A-C; 4  Taxol; 6.5 weeks radiation completed June, 2002;
recurrence in one 
lymph node in  super clav area 9/02; one cycle of Xeloda
(4,500 mg. per day) 
resulting in bad  reaction, 11 days in hosp., 5 in ICU;
recuperated until Jan., 
03; 1st lymph node  slightly larger, 2nd smaller one;
low-dose Xeloda/radiation 
combination for one  month; continued with Xeloda; followup
visit at 
MDAnderson in late April, 2003,  showed two lymph nodes had
shrunk.  NED since August, 
2003.  Took  2,500 mg. of Xeloda per day; two weeks on, two
weeks off; also 
Celebrex and Vit.  B6 twice a day.  Two new nodes 
discovered in Sept., 2005.  
Stopped  Xeloda. Took 8 Abraxane treatments (3 weeks on, 1
week off); No 
effect.  Started Navelbine treatments  3/27/06.  

[list software deleted text/html attachment]

-- 
** List address: ibcibcsupport.org
** Information - subscribe, unsubscribe, archives, etc.:
**  http://www.ibcsupport
.org/list/
** Donations: http://www.i
bcsupport.org/donations.html